News

Below is a listing of the publicity The Children’s Medical Research Foundation has received from various publications and television. Please contact Brad or Sue Wilson at (708)-784-0631 to obtain a copy.

View our KirbyGram Newsletter

 

Press Releases

  • Cleveland, OH, March 24, 2016 – Abeona Therapeutics announced that the Phase I/II clinical trial for MPS IIIA at Nationwide Children’s Hospital in Columbus, OH has now gone live on the clinicaltrials.gov website. Click here for eligibility criteria and contact information.
  • Cleveland, OH, February 29, 2016 – Abeona Therapeutics announces FDA Allowance of Investigational New Drug (IND) for systemic AAV Phase I/II Clinical Study with ABO-102 Gene Therapy for Patients wit Sanfilippo Syndrome Type A (MPS IIIA).
  • Abeona Therapeutics Receives U.S. Orphan Drug Designations for treatment of Sanfilippo Syndromes A and B,  May 12, 2014

The Suburban LIFE Citizen

  • “Wilsons are fighting for Kirby”, December 20, 1995
  • “Wilson family extends gratitude”, July 27, 1996
  • “Wilsons continue fight for Kirby”, June 21, 1977
  • “Family fights to find a cure”, September 23, 1998
  • “Get-well wishes flock to area first-grader”, December 19, 1998
  • “Girls plan benefit for former classmate”, June 2, 1999
  • “Out to make a difference”, June 12, 1999
  • On-line shopping helps foundation, December 11, 1999
  • Drawing to help children’s foundation, February 5, 2000
  • “Holiday shopping can benefit local foundation, December 10, 2000
  • Western Springs residents made year memorable, December 31, 2000
  • “Children’s foundation schedules benefit, January 31, 2001
  • Kirby’s cure possible with foundation’s help, February 24, 2001
  • “Cure Around the corner,” January 29, 2003
  • “Family continues fight to help daughter,” January 31, 2004
  • “Working toward a Cure for Kirby,” December 25th & 26th, 2004
  • Fundraiser to support Sanfilippo B Syndrome research, January 22, 2006
  • Event to raise funds to fight rare disorder, January 28, 2007
  • “Help support foundation’s research with Sweetheart dance,” January 20, 2008

The Doings

  • “Research offers hope for Kirby”, January 24, 1996
  • “Children’s theater offers area family unique holiday gift”, December 2, 1998
  • “Friends walk to help Kirby”, June 11, 1999
  • “Daughter inspires annual fund-raiser,” January 22, 2004

The Chicago Tribune

  • “More education urged to fund research of rare disease”, August 28, 1995
  • “Girl’s parents raise funds – and hope”, October 16, 1998
  • “Students inspired by 7-year-old girl’s battle”, December 2, 1998
  • “Students collect $52,000 for ill girl”, December 24, 1998
  • Tempo’s PlacesPartiesPeople, February 8, 2001
  • “Group seeks cure for disease,” January 23, 2008

Chicago Sun-Times

  • “Sweetheart Dinner Dance,” January 26, 2001

One Source

  • “Little Girl, Big Illness”, Winter, 1998

Style Weekly

  • “Racing For A Cure”, June 15, 1999

CLTV

  • Health Watch “Sanfilippo Syndrome”, Fall, 1995
  • Health Watch “Sanfilippo Syndrome”, Spring, 2000

WLS TV

  • “A Parent’s Wish”, Fall, 1995
  • “A Cure For Kirby”, May, 1999

NBC
Sanfilippo was featured on the April 6, 2000 episode entitled “Viable Options” of NBC’s hit show ER!  Our thanks to the staff of the show and the NBC affiliates for helping us spread the word on Sanfilippo Syndrome.

Athens Banner-Herald

  • “UGA scientists study stem cells, July 17, 2001

Atlanta Business Chronicle

  • “Using stem cells to reverse nerve damage, June 15, 2001

Northwest Indiana Times

  • “Disease of sons and daughters,” May 2, 2004

The Marquette Tribune

  • Student-athletes get green for Kirby,” February 20, 2007
  • In the eyes of the beholder,March 22, 2007