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Late Breaking News

Late Breaking News

Abeona Therapeutics continues to show progress and bring hope to families.

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Purple Lemonade Stand

Purple Lemonade Stand

Along with other family foundations involved in raising funds toward the cure for Sanfilippo Syndrome, stuff we have been invited to participate in a national effort called Purple Lemonade – A Stand for Sanfilippo Syndrome. It was the vision of Grey Chapin, a six-year-old determined to fund a cure for the disorder that afflicts her older sister Blair. Please take a moment to read further to...

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Webinar: October 8

Webinar: October 8

Nationwide will be hosting a webinar October 8th from 2:00 – 3:30 EST to further explain the MPS IIIA/IIIB Natural History Study, including the rationale, aims, and plans for enrollment. This will be a 90-minute webinar with 45 minutes of slides/presentations followed by 45 minutes of questions. Further details to follow, including call-in information. Space is limited to 250 attendees. Learn...

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Trivia Night

Trivia Night

Pencil us in on your calendars for Friday, pills November 15th.  It is the date of our 3rd Annual Trivia night at the Hinsdale Community House.  You can be sure of a night filled with trivia, friends and good times.  Reservations are $25.00 per person. For more information, call 708-784-0631 or send an email to curekirby@sbcglobal.net. Register...

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UPDATE: Dr. Elizabeth Neufield – November 2010

Update from the laboratory of Dr. Elizabeth Neufield – November 2010 For many years, we have focused on two questions: why is the brain so severely affected in patients with Sanfilippo syndrome, and how can we develop treatment for this disease, using our mouse model of Sanfilippo syndrome type B (MPS IIIB)? We believe that we are now close to an answer to both questions. The primary defect...

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