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Fore Kirby

Fore Kirby

The Foundation is actively seeking new participants for The Seventeenth Annual “Fore Kirby” Golf Fun Raiser. Date: Friday,  June 1, 2012 Where: Ruffled Feathers Golf Club How will the proceeds from the Golf Fun Raiser be used? Your contribution will help us to fund researchers currently seeking funding from The Children’s Medical Research Foundation, Inc. to continue their...

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A Cure is Within Our Reach

From the early days when we found only one researcher in the world working on a cure for Sanfilippo, to today when we face an exceptional opportunity, our mission to find a cure has never been more defined.  Please join us in our mission to find a cure for Kirby and other afflicted children.  We chose to fight this disease.  Let’s take our biggest step together.   Donate what you can,...

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Kirby’s 20th Birthday

This past week we celebrated Kirby’s 20th birthday.   As the day approached,  I couldn’t help but have some bittersweet feelings.   I thought back to the story my parents tell about Kirby’s diagnosis, when the doctor told my parents, well, enjoy her while you have her.  On that day, none of us knew what to expect or how long Kirby would be with us.  After that day, we...

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Kimberly Fowler

Kimberly Fowler

KIMBERLY FOWLER 1987 – 2014 Kimberly Fowler was a very special girl who touched the lives of so many people.  She taught us the importance of patience, compassion and most of all unconditional love.  She made us focus on all the beautiful things that the Lord has provided.  We took nothing for granted.  The most important things in life to us were not our material possessions.  It was...

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Faith In Remembering

Faith In Remembering

Over the past few months, I have compiled a huge collection of photos of Kirby.  I looked at the pictures of her in her younger years and saw a vivacious and energetic girl smiling back at me.  I remembered spending hours with her, treatment letting our imaginations run wild as we made fun for ourselves.  We had a connection that bridged the gap between sisters and friends, and...

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