The Children’s Medical Research Foundation, Inc. was formed in July, 1995 for the purposes of
raising public awareness and funds to support medical and scientific research into the causes of,
and cures for Sanfilippo Syndrome and other neuro-genetic diseases afflicting children.
The Foundation is a public 501 (c) (3) corporation. Its founders, R. Bradford and Susan M.
Wilson, made the decision to form the Foundation shortly after their then four-year-old daughter,
Kirby, was diagnosed with Sanfilippo B Syndrome. Doctors can do nothing to stop the regression
and little for the symptoms, yet.
After talking with doctors and scientists throughout the world, the Wilsons found just one
researcher working with their daughter’s disease. The researcher was confident in her research
but could not say when a cure would be found. She was hopeful her work would encourage others
because “the more of us that work on the disease, the faster we will find a treatment.” Thus,
it became urgent to the Foundation’s Board to ensure that adequate funding reached interested
researchers as soon as possible.
No public fund-raising organizations are used by the Foundation in order to minimize expenses
and maximize the funds available to give to medical researchers. All fund-raising is done by
the Foundation’s founders and volunteers. As a result, more than 95% of all receipts to the
Foundation have been appropriated to fund research.
Contributing to the Foundation are numerous other families with afflicted children. Of particular
note are David and Anna Kidwell of Louisville, KY, in honor of their daughters Brooke and
Ashleigh; Gene and Cynthia Logan of Plainville, CT, in honor of their daughter Rhianna with
Rhianna’s Hope; Randall and Elisabeth Linton of Toronto, Canada, who formed The Sanfilippo
Children’s Research Foundation in honor of their daughter Elisa; Stuart and Jennifer Siedman of
Wellesley, MA, who established Ben’s Dream: Sanfilippo Research Foundation in honor of their
son Ben; John and Joan Bellontine of Huntington Station, NY who founded Grace for a Cure in
honor of their daughter Grace; Doug and Tracie Nicoll of Colorado Springs, CO, in honor of their
sons Douglas and Cameron with Pennies for Nicoll, and Greg and Toni Graham of Salinas, CA,
who formed Little Jacq’s Corner for their daughter Jacqueline.
To date, the Foundation has granted over $3.7 million to eight research groups and now stands
at the doorstep of a cure. Our mission has never been more defined. We ask for your support in
taking this final step to turn hope of a cure into a reality. For further details and up-to date news
on our needs and progress, please visit the “Late Breaking News” page of our site.