About Us

Twenty-five-year-old Kirby Wilson was diagnosed with Sanfilippo “B” Syndrome, a rare and catastrophic genetic disorder in 1995, at the age of four.  Kirby is one of thousands of afflicted children worldwide.  There is no cure or treatment… yet.

The Children’s Medical Research Foundation, Inc. was formed by Kirby’s parents in 1995 to fund medical research and find a cure for Sanfilippo Syndrome and other neuro-genetic disorders.  To date, the not-for-profit Foundation has granted over $3.7 million to eight research groups with more than 95% of all receipts appropriated to fund research.

We invite you to learn more about Sanfilippo Syndrome, the Foundation, its work and how to help pave the way for a healthy future for Kirby and others like her.