Sixteen-year-old Kirby Wilson was diagnosed with Sanfilippo
"B" Syndrome, a rare and catastrophic genetic disorder in 1995, at the age of
four. Kirby is one of thousands of afflicted children worldwide. There is no cure or treatment... yet.
The Children's Medical Research Foundation, Inc. was formed
by Kirby's parents in 1995 to fund medical research and find a cure for
Sanfilippo Syndrome and other neuro-genetic disorders. To date, the
not-for-profit Foundation has funded research at seven universities, with more
than 95% of all receipts appropriated to fund research.
We invite you to learn more about Sanfilippo Syndrome, the
Foundation, its work and how to help pave the way for a healthy future for Kirby
and others like her.
